Roughly three months ago Adonis had to wear a heart monitor for seven days to track things like heart rate, rhythm & to see if he was having any spells of svt.(Don't worry I`ll be going over that and his other medical diagnoses soon) Well after the seven days, I sent off the monitor to get reviewed. The results of it did cause for a change in medication that took place before the actual appointment. He went from taking Digoxin twice a day to Propanol three times a day. (He was on Propanol in NICU, so it’s not like he changed to a medication he was never introduced to & it’s a low dosage.)
Fast forward to the appointment roughly two weeks later. Adonis cardiologist and I discussed results in more detail. Also, an echo was ordered along with his normal EKG. Of course, the echo just had to find something 🙄 No, but seriously have you ever gone to an appointment thinking ok this has to be it, nothing else can go wrong then boom something else is wrong? Well, the findings of the echo turned out to be Adonis had a bit more fluid than normal. Which led to a prognosis of pericardial effusion. We ultimately related this to a cold that he had got over within the time frame of waiting on the appointment. I was told not to worry as it should clear itself up. Can somebody please explain to me why doctors give bad news then say oh don't worry? Like first off you just told me something that I wasn't prepared for and know nothing about. Not only that in every other case I was told not to worry it actually was something for me to worry about.
Anyways, after that appointment we did weekly follow-ups and now we are doing one-month follow-ups. (We went Monday 5/9/22). & of course, fluid was still there. No change however so it's not getting better or worse. At this point my mind is just racing with possibilities. Cause if this happened from a cold three months ago why the hell hasn't it resolved itself? Damn fluid got me questioning myself. Did something hit him in the chest? Did he fall and I don't remember? My list of possibilities at this point are endless. And can you believe I haven't talked to the actual cardiologist yet? She is relaying messages through people. Like lady you know I don't even play like that. (Call me a pain I don't care. Its mandatory that all his doctors call me themselves unless they absolutely can't. And even then, I still expect a call once they finish up with whatever)
Anyways, currently that's the only thing really giving us problems. He went in for his four-month follow-up with hematologist and everything's appears to be good, although we have to wait on labs to be sure. His pediatrician said he looked good at his one-year checkup and neurosurgery cleared him for the year.
Quick sidenote: Parents do not accept anything you are not comfortable with. I've made it clear from day one when it comes to Adonis, I don't take anything lightly. I question his doctors and medical personal so much, to where if I don't have any questions, they are worried. Also, I am able to reach all of them even if out the office. When Adonis was in Nicu his hematologist took a vacation out the country. Gots to know she was still available if I needed her. Just because a medical personal has a degree doesn't mean they know what's best for your child. As a parent you always have the final say so.
What is Pericardial effusion? Pericardial effusion (per-e-KAHR-dee-ul uh-FU-zhun) is the buildup of too much fluid in the double-layered, saclike structure around the heart (pericardium). The space between these layers typically contains a thin layer of fluid.
* Yes, I copied from Google. This sort of what his Cardiologist said though so it's one in the same.
Basically in between the layers of the heart, within the sac is a teensy tiny bit of fluid to help the heart move. Well, when a person gets more than what is considered a normal amount of fluid buildup it is called Pericardial effusion. The fluid buildup can happen for many reasons like trauma, viral infections etc. And in most cases if small enough it can resolve itself. Worst case scenario the fluid would need to be drained by entering a needle in the chest.
Until next post ... Write you guys later!
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